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SHARE: Sisterhood of Breast Cancer Survivors

"Uplift: Secrets from the Sisterhood of Breast Cancer Survivors" shares the wisdom of survivors with the newly diagnosed. What's your story?

One of the greatest challenges for those who have been newly diagnosed is finding sources of support. Patients are eager for information on everything from enduring surgery and chemotherapy to how to deal with hair loss.

Bestselling author and breast cancer survivor Barbara Delinsky has gathered the wisdom of hundreds of survivors eager to inspire those who are new to the “breast cancer sisterhood.” She shares the stories and tidbits she found in her book Uplift: Secrets from the Sisterhood of Breast Cancer Survivors.

First published in 2001, the book was updated for a 10th-anniversary edition published last year. Delinsky donates all the profits from the book to fund a research fellowship at Massachusetts General Hospital.

Delinsky describes Uplift as a “comprehensive support group in a book form.”

“It is a handbook of practical tips and upbeat anecdotes that I compiled with the help of more than 400 breast cancer survivors, their families and friends. They gave me the book that I wish I’d had way back when I was diagnosed.”

Not everyone knows what to say when a friend or family member reveals a breast cancer diagnoses. Some of the women in "Uplift" shared that when people don’t know what to say, they say nothing at all, which Delinsky says is the worst possible choice.

“A note, an email, a voicemail simply saying 'I’m thinking of you' is the kindest thing in the world.” 

When Delinsky was looking for answers to questions, she found “nurses more informative when it came to answering mundane questions that weren’t mundane to me at all.”

Delinsky says look to your local hospital, faith organizations and even your workplace as potential sources of support.

“One of the comments I got over and over again from contributors to 'Uplift' was that after they were diagnosed, women came out of the woodwork to say that they’d been there, that they understood, that they wanted to help.”

Delinsky says she believes her life is better for having had breast cancer.

"I cherish my husband and kids more than ever. I view my grandchildren as a gift. And my career is frosting on the cake! So many of my 'Uplifters' [women she quotes in her book] have taken breast cancer as a wake-up call to appreciate their lives all the more, even dared to go back to school or do something entirely different with their lives.”

Those who are newly diagnosed with breast cancer also should be “uplifted” by the large sisterhood of survivors that have lived to share their wisdom, says Delinsky.

“Women are surviving breast cancer in numbers that were unheard of a generation ago. We’re being diagnosed earlier and being treated more effectively. More than 2.5 million women have had breast cancer and are now alive and well. Much of this is the result of mammography. Any woman who fears the 'pain' of mammography should know that five seconds of discomfort can lead to years and years of a longer life.”

TELL US: Do you have an experience with breast cancer that you would like to share? Honor the sisterhood of survivors in our town by uploading a photo to the gallery above or sharing your story in the comment section below.

Teller of Truth (The real one that is!) October 17, 2012 at 02:37 PM
Save the boobies! lol I wish I had some myself so I could save them!
Margo Kasdan October 17, 2012 at 04:07 PM
Six years ago I was diagnosed with breast cancer. I was so lucky to have been taken to meetings of the Cancer Support Community. They introduced me to other women and men with whom I would not usually have had contact because of the things that divide people: education, money, religion, politics. But cancer trumps everything. And it connects people. I find that telling a stranger I have (had) cancer creates an immediate bond. If it turns out that if the person is a fellow warrior, exchanging our cancers stories forms the basis of a small, if brief, relationship. If the person is not burdened, cancer stirs automatic compassion and sympathy. For me the Cancer Support Community group has been a surprise gift of support and friendship that has meant everything to me over the years. It helped with a first mastectomy. Then, this April, a separate diagnosis led to my second mastectomy. The evening before the surgery, the group held a potluck party to cheer me on. I attribute the ease and low anxiety of the surgery experience to their advice, spiritual confirmation, encouragement and insight they share every week. The programs are offered at NO cost, through the Cancer Support Community, headquartered in Redondo Beach. I know that other groups meet in Los Alamitos and elsewhere. Cancer is no longer a secret, and this is healthy for everyone.
gale vance October 18, 2012 at 04:24 AM
Hi Margo, so glad you could find a group to support you. Here in Illinois, I joined a wonderful group at the Wellness house in Hinsdale. It was called cancer and spirituality. We talked about our fears, our faith coming from various spiritual backgrounds, the difficulties of asking for support and of needing support. A Few of us, very few actually, died along the way and we could be there for the family and each other to grieve. We still meet 12 years later ar each others homes when the need arises.

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